O que considerar para o desenvolvimento dos cuidados paliativos e os cuidados no fim da vida?
Referências
1-Calazani, N, Koffman, J, Higginson IJ, I. (2013). Palliative and end of life care for Black, Asian and Minority Ethnic Groups in the UK: Demographic profile and the current state of palliative and end of life care provision. London: King’s College London, Cicely Saunders Institute. [online]. Available from: https://www.mariecurie.org.uk/globalassets/media/documents/who-we-are/diversity-and-inclusion-research/palliative-care-bame_full-report.pdf(accessed on 24 August 2015).
2-Dixon J, King D, Matosevic T, Clark M, and Knapp M. (2015) Equity in the Provision of Palliative Care in the UK: Review of the Evidence. London: Personal Social Services Research Unit, London School of Economics and Political Science and Marie Curie. Available at: www.mariecurie.org.uk/globalassets/media/documents/policy/campaigns/equity-palliative-care-uk-report-full-lse.pdf (accessed on 24 August 2015).
3-Marie Curie 2014. Next Steps: Improving end of life care for Black, Asian and Minority Ethnic people in the UK. Marie Curie: London. Available at: www.mariecurie.org.uk/globalassets/media/documents/who-we-are/diversity-and-inclusion-research/next_steps_report.pdf (accessed on 24 August 2015).
4-Kennedy, P. Sarafi, C and Greenish, W (2013). Homelessness and end of life care: Practical information and tools to support the needs of homeless people who are approaching the end of life, and those who are bereaved. London: Marie Curie and St Mungo’s. Available at: www.mariecurie.org.uk/globalassets/media/documents/commissioning-our-services/current-partnerships/homeless_report.pdf(accessed on 24 August 2015).
5-Marie Curie and St Mungo’s (2011). Supporting homeless people with advanced liver disease approaching the end of life. London: Marie Curie and St Mungo’s. Available at: www.mariecurie.org.uk/globalassets/media/documents/commissioning-our-services/current-partnerships/st-mungos-supporting-homeless-may-11.pdf (accessed on 24 August 2015).
6-Turner et al (2011) Care or custody? An evaluation of palliative care in prisons in North West England. Palliat Med: June 2011 vol. 25 no. 4 370-377
7-NHS Improving Quality (2014). The route to success in end of life care – achieving quality in prisons and for prisoners. London: NHS Improving Quality. Available at: www.nhsiq.nhs.uk/media/2387182/rts-prisons-dec-14.pdf (accessed on 24 August 2015)
8-Hospice UK (formally Help the Hospices) (2013). Towards Excellence in Hospice Care: Widening access to palliative care for people with learning disabilities: Guidance and resources for professionals. McEnhill, L. London: Hospice UK. Available at: www.learningdisabilityanddementia.org/uploads/1/1/5/8/11581920/hth_learning_disabilities_doc_singles_06_lr.pdf (accessed on 24 August 2015).
9-House of Commons (2004). House of Commons Health Committee. Palliative Care. Fourth Report of Session 2003-04. Volume 1. London: Stationary Office. Available at: www.publications.parliament.uk/pa/cm200304/cmselect/cmhealth/454/454.pdf (accessed on 24 August 2015).
10-National Council of Palliative Care and Public Health England (2015). NCPC’s annual Minimum Data Set for Specialist Palliative Care (MDS); Equity in the Provision of Palliative Care in the UK. London: NCPC and Public Health England. Available at: www.ncpc.org.uk/sites/default/files/MDS%20Full%20Report%202012.pdf(accessed on 24 August 2015).
11-Office of National Statistics (2015). National Survey of Bereaved People (VOICES), 2014.London: ONS. Available at: www.ons.gov.uk/ons/dcp171778_409870.pdf (accessed on 24 August 2015).
12 -Care Quality Commission (CQC) (2014). Inequalities and Variations in End of Life Care. London: CQC. Available at: www.cqc.org.uk/sites/default/files/20150415%20Inequalities%20in%20EOLC%20project%20briefing%20updated.pdf(accessed on 24 August 2015)
13-National End of Life Care Intelligence Network (2015). What we know now 2014.London: Public Health England. Available at: www.endoflifecare-intelligence.org.uk/home (acccessed on 24 August 2015).
14-Department of Health (2015). One Chance to Get it Right: One Year On Report: An overview of progress on commitments made in Once Chance to Get it Right: the system-wide response to the Independent Review of the Liverpool Care Pathway. London: Department of Health 2015. Available at: www.gov.uk/government/uploads/system/uploads/attachment_data/file/450391/One_chance_-_one_year_on_acc.pdf (accessed on 24 August 2015).